Off we go again on Monday. Maura and Jett arrive shortly after we do and this time Aunt Leila has a yummy dinner waiting for us. After dinner Jenna, Maura, and I take Jett for a walk. I really needed to be moving. Honestly, I’d been more anxious the past few days. Perhaps a combination of having increased ooky tummy stuff, more frequent fatigue, less physical activity, and the creeping in of more negative thoughts. After meeting with Paula, Dr. Vlahovic, and Kim on Tuesday, plans are in place to address all of this. Great advice from a variety of wise friends and the Streams in the Dessert daily devotional readings, and I’ve already made great strides regrouping those pesky negative thoughts.
Speaking of Tuesday…labs present a bit of a curve, my glucose is high. We meet Dr. Vlahovic who says, you feel fine, don’t you? This is NOT going to stop you from being treated, “Paula, call the drug company!” As you can imagine, Jenna and I immediately like this woman. This is quickly resolved and Dr. V thinks the high value is due to the timing and what I’ve eaten in combination with the increased anxiety. OK, we’ll go with that. White counts are good, platelets a bit low. I can get all of my stealth bomber drug (thank goodness!) but a little less of the gem. Dr V answers a few other questions and off we go to the treatment room to get some timelines from Kim.
Due to the delays working out the lab stuff, drugs don’t start running until 2:30, stealth bomber at 3:00. In talking to Kim, she is concerned that we get a better handle on the nausea this week and recommends starting to use Zofran every 12 hours on a schedule instead of waiting for symptoms. This is the anti nausea drug I get IV before the stealth bomber/TH302 but I do not have a prescription for this. She calls Paula who talks with Dr. Vlahovic whose PA provides a prescription to Kim. Voila! Will get that filled at home on Wednesday and start taking it Wednesday evening.
Fortunately the drive home is much more comfortable than last week. Even stay awake until the last 45 minutes or so. Have a chance to get the hugs I need and visit with Jim this time before drugs and bed. Crashed before Brent gets back from work so I’ll get a few extra hugs from him tomorrow : )