Friday, January 29, 2010

Second Treatment

What a week. Jenna and I have another safe trip to Chapel Hill on Monday. This time my cousin Maura and her sweet dog Jett join us for dinner. We enjoy some great take out Thai food. It was more fun to eat together at Leila’s that sit in a restaurant. I love that Jenna is getting to know an aunt and cousin that she’s only really known through stories or pictures. More examples for her of the strong women in this family.

Tuesday is a crazy day in the clinic and the treatment room because the day before had been a holiday. Everything goes well, just a busier place than usual. We had known that Dr. Blobe would be out of town this and the following Tuesday and I would be meeting Dr. Vlahovic. She was double booked that day so although she signed off on my labs, we met with her PA instead. Got to the treatment room and had Kim (hooray!) again. Once the port is accessed and drugs start flowing, things go smoothly since the protocol has to run on a timeline.

I send out my stealth bomber texts to get those interested. Some are visualizing the TH302 doing it’s thing. I love all that thought and energy working for me! Others send calming thoughts and prayers to remind me that Jenna and I are not alone here and that Jim, the boys and my parents are not alone at this time.

We head home about 5:30 but unfortunately the nausea hits about 2 hours into the drive. Ice cream and anti nausea meds helped. Poor Jim and Brent. I hit the door in rough shape. Hug me, drug me, and put me to bed!

Fortunately hope springs eternal and Wednesday is another great day. As the week runs on the whole ooky tummy, mild gem flu and more frequent episodes of fatigue hit. Makes for more of a mental challenge as we come down off the initial high of finding the hope this protocol offers. Still, in the big scheme of side effects this ain’t so bad.